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In July 2012, at the age of 38, I was given the devastating news that I had advanced ovarian cancer. This is my blog and the story of my fight to regain my health. I hope to share with you things that I've found helpful along my journey and keep you posted on my progress.

Tuesday, 21 April 2015

Do More for Cancer

Hi Everybody,

Just a quick note to say that my husband John has written a letter to all the main political party leaders, urging them to set more ambitious targets, to be bolder in tackling the barriers to progress and to give cancer a much higher priority.  You can read John's letter to the Party Leaders here: 

Letter to Party Leaders urging UK Governement to Do More for Cancer

In an attempt to offer constructive suggestions, he has sent them a copy of an article that he has written entitled “Cancer – Where are we going wrong?”, which offers a carer’s perspective on cancer care in the UK and where he feels our management of cancer is sub-optimal and could be improved. You can see an online copy of the article on my website by clicking on the link on the right or you can read the PDF version sent to the Party Leaders here:

Article sent to Party Leaders : Cancer - Where are we going wrong?

 

Support our Petition - Do More for Cancer



If you believe that the Government should be aiming higher and setting bolder targets for improving cancer care, please support our petition to urge the Government to do more for cancer (#domoreforcancer).

You can sign the petition at : https://www.change.org/p/uk-goverment-do-more-for-cancer 

Please also help us by telling your friends and family about this initiative - the more we publicise this the more influence it will have.

Waiting for treatment – the impatient patient!

Hi everybody,

A month has gone by since my last post, so I wanted to give you a quick update on what’s been happening.

The short answer is that I am still waiting for my next treatment to start and things are moving along at a frustratingly slow pace.  I am due to have a port inserted into my chest, which they can use to give me the new trial drug that I’m hopefully going to be having and also to take blood.  The surgery for this is scheduled for the 27th April and has to be done under general anaesthetic, but I’m hoping that I won’t have to spend the night in hospital.

I am seeing the Drug development Unit at the Royal Marsden on Friday 24th April to discuss the screening and other arrangements for the trial and hope to start it in early May.  I am still not 100% sure if I’m going to qualify for it, so I’m becoming a bit anxious, as it seems to be taking a long time to organise.


In the meantime I’ve decided to change my diet again to be stricter with foods that I think will support my body’s natural defences.  I’m now on a raw food diet, which I’ve not done before.   I thought this might be quite hard to do but I’m actually finding it easier than I thought.  For breakfast I am having a pint of green juice, a small bowl of berries and occasionally a kiwi fruit.  Around mid-morning I have another pint of green juice and then for lunch I make a big organic superfood smoothie, which contains about 16 ingredients, including kale, avocado, some fruits, nuts, seeds, coconut oil, protein powder, unsweetened almond milk, distilled water and some super foods like spirulina and goji berries.  I usually finish this by 2pm and then fast until the next morning (around 18 hours).  I am hoping that this will help to detox my body and get rid of a little extra weight at the same time!  The good news is that I feel good on the new diet, so I’m pleased about that.

It’s also now just over a month since John and I got married.  I am pleased to report that married life is going well!  Of course not a lot has changed on a day to day basis, but the fact that I now have a wedding ring and that we are pledged and committed to each other means a lot to me.  I am still in the process of changing my name on various documents.  It’s quite difficult to get used to my new surname, as it’s a big change for me after 40 years with the old one, but I am enjoying being a “Mrs”!

I’ll update you again when I know more about the clinical trial.  I'm also hoping to be able to report soon on an article that John has been writing about issues with cancer care in the UK.

Thank you for all your ongoing support.  Please feel free to get in touch with me or post any comments below.